Tag - Type: review

Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory.
Bernier, Alexander; Molnár-Gábor, Fruzsina; Knoppers, Bartha M; Borry, Pascal; Cesar, Priscilla M D G; Devriendt, Thijs; Goisauf, Melanie; Murtagh, Madeleine; Jiménez, Pilar Nicolás; Recuero, Mikel; Rial-Sebbag, Emmanuelle; Shabani, Mahsa; Wilson, Rebecca C; Zaccagnini, Davide; Maxwell, Lauren
Eur J Hum Genet, Volume 32, Issue 1 (2024)
PMID: 37322132 DOI: 10.1038/s41431-023-01403-y 
Citations: 12 (Scopus)
Tags: Consortia: BBMRI-ERIC | Consortia: CINECA | Consortia: EUCAN-Connect | Consortia: EUCAN-ELSI | Consortia: EUCANCan | Consortia: euCanSHare | Type: data governance | Type: review

Software Application Profile: ShinyDataSHIELD—an R Shiny application to perform federated non-disclosive data analysis in multicohort studies
Escribà-Montagut, Xavier; Marcon, Yannick; Avraam, Demetris; Banerjee, Soumya; Bishop, Tom R P; Burton, Paul; González, Juan R
International Journal of Epidemiology, Volume 52, Issue 1 (2023)
DOI: 10.1093/ije/dyac201 
Citations: 2 (Scopus)
Tags: Consortia: ATHLETE | Consortia: EUCAN-Connect | Type: review | Type: software engineering

Advancing tools for human early lifecourse exposome research and translation (ATHLETE): Project overview.
Vrijheid, Martine; Basagaña, Xavier; Gonzalez, Juan R; Jaddoe, Vincent W V; Jensen, Genon; Keun, Hector C; McEachan, Rosemary R C; Porcel, Joana; Siroux, Valerie; Swertz, Morris A; Thomsen, Cathrine; Aasvang, Gunn Marit; Andrušaitytė, Sandra; Angeli, Karine; Avraam, Demetris; Ballester, Ferran; Burton, Paul; Bustamante, Mariona; Casas, Maribel; Chatzi, Leda; Chevrier, Cécile; Cingotti, Natacha; Conti, David; Crépet, Amélie; Dadvand, Payam; Duijts, Liesbeth; van Enckevort, Esther; Esplugues, Ana; Fossati, Serena; Garlantezec, Ronan; Gómez Roig, María Dolores; Grazuleviciene, Regina; Gützkow, Kristine B; Guxens, Mònica; Haakma, Sido; Hessel, Ellen V S; Hoyles, Lesley; Hyde, Eleanor; Klanova, Jana; van Klaveren, Jacob D; Kortenkamp, Andreas; Le Brusquet, Laurent; Leenen, Ivonne; Lertxundi, Aitana; Lertxundi, Nerea; Lionis, Christos; Llop, Sabrina; Lopez-Espinosa, Maria-Jose; Lyon-Caen, Sarah; Maitre, Lea; Mason, Dan; Mathy, Sandrine; Mazarico, Edurne; Nawrot, Tim; Nieuwenhuijsen, Mark; Ortiz, Rodney; Pedersen, Marie; Perelló, Josep; Pérez-Cruz, Míriam; Philippat, Claire; Piler, Pavel; Pizzi, Costanza; Quentin, Joane; Richiardi, Lorenzo; Rodriguez, Adrian; Roumeliotaki, Theano; Sabin Capote, José Manuel; Santiago, Leonardo; Santos, Susana; Siskos, Alexandros P; Strandberg-Larsen, Katrine; Stratakis, Nikos; Sunyer, Jordi; Tenenhaus, Arthur; Vafeiadi, Marina; Wilson, Rebecca C; Wright, John; Yang, Tiffany; Slama, Remy
Environ Epidemiol, Volume 5, Issue 5 (2021)
PMID: 34934888 DOI: 10.1097/EE9.0000000000000166 
Citations: 53 (Scopus)
Tags: Consortia: ATHLETE | Consortia: EUCAN-Connect | Consortia: HELIX | Consortia: LifeCycle | Study: BISC | Study: BiB | Study: CELSPAC-TNG | Study: DNBC | Study: EDEN | Study: ENVIRONAGE | Study: Gen R | Study: INMA | Study: KANC | Study: MoBa | Study: NINFEA | Study: PELAGIE | Study: Piccolipiu | Study: Rhea | Study: SEPAGES | Type: review

The LifeCycle Project-EU Child Cohort Network: a federated analysis infrastructure and harmonized data of more than 250,000 children and parents.
Jaddoe, Vincent W V; Felix, Janine F; Andersen, Anne-Marie Nybo; Charles, Marie-Aline; Chatzi, Leda; Corpeleijn, Eva; Donner, Nina; Elhakeem, Ahmed; Eriksson, Johan G; Foong, Rachel; Grote, Veit; Haakma, Sido; Hanson, Mark; Harris, Jennifer R; Heude, Barbara; Huang, Rae-Chi; Inskip, Hazel; Järvelin, Marjo-Riitta; Koletzko, Berthold; Lawlor, Deborah A; Lindeboom, Maarten; McEachan, Rosemary R C; Mikkola, Tuija M; Nader, Johanna L T; de Moira, Angela Pinot; Pizzi, Costanza; Richiardi, Lorenzo; Sebert, Sylvain; Schwalber, Ameli; Sunyer, Jordi; Swertz, Morris A; Vafeiadi, Marina; Vrijheid, Martine; Wright, John; Duijts, Liesbeth
Eur J Epidemiol, Volume 35, Issue 7 (2020)
PMID: 32705500 DOI: 10.1007/s10654-020-00662-z 
Citations: 113 (Scopus)
Tags: Consortia: EUCCONET | Consortia: LifeCycle | Study: 3D | Study: ALSPAC | Study: BiB | Study: CHOP-Belgium | Study: CHOP-Germany | Study: CHOP-Italy | Study: CHOP-Poland | Study: CHOP-Spain | Study: DNBC | Study: EDEN | Study: ELFE | Study: GECKO | Study: Gen R | Study: HBCS | Study: INMA | Study: MoBa | Study: NFBC1966 | Study: NFBC1986 | Study: NINFEA | Study: Raine Study | Study: Rhea | Study: SWS | Type: data harmonization | Type: review

Rationale for a Swedish cohort consortium.
Sundström, Johan; Björkelund, Cecilia; Giedraitis, Vilmantas; Hansson, Per-Olof; Högman, Marieann; Janson, Christer; Koupil, Ilona; Kristenson, Margareta; Trolle Lagerros, Ylva; Leppert, Jerzy; Lind, Lars; Lissner, Lauren; Johansson, Ingegerd; Ludvigsson, Jonas F; Nilsson, Peter M; Olsson, Håkan; Pedersen, Nancy L; Rosenblad, Andreas; Rosengren, Annika; Sandin, Sven; Snäckerström, Tomas; Stenbeck, Magnus; Söderberg, Stefan; Weiderpass, Elisabete; Wanhainen, Anders; Wennberg, Patrik; Fortier, Isabel; Heller, Susanne; Storgärds, Maria; Svennblad, Bodil
Ups J Med Sci, Volume 124, Issue 1 (2019)
PMID: 30618330 DOI: 10.1080/03009734.2018.1556754 
Citations: 5 (Scopus)
Tags: Consortia: Swedish Cohort Consortium | Type: data harmonization | Type: review

Data Safe Havens in health research and healthcare.
Burton, Paul R; Murtagh, Madeleine J; Boyd, Andy; Williams, James B; Dove, Edward S; Wallace, Susan E; Tassé, Anne-Marie; Little, Julian; Chisholm, Rex L; Gaye, Amadou; Hveem, Kristian; Brookes, Anthony J; Goodwin, Pat; Fistein, Jon; Bobrow, Martin; Knoppers, Bartha M
Bioinformatics, Volume 31, Issue 20 (2015)
PMID: 26112289 DOI: 10.1093/bioinformatics/btv279 
Citations: 57 (Scopus)
Tags: Consortia: BBMRI-LPC | Consortia: BioSHaRE-EU | Consortia: Welsh and Scottish Farr Institutes | Type: data governance | Type: review

DataSHIELD: an ethically robust solution to multiple-site individual-level data analysis.
Budin-Ljøsne, Isabelle; Burton, Paul; Isaeva, Julia; Gaye, Amadou; Turner, Andrew; Murtagh, Madeleine J; Wallace, Susan; Ferretti, Vincent; Harris, Jennifer R
Public Health Genomics, Volume 18, Issue 2 (2015)
PMID: 25532061 DOI: 10.1159/000368959 
Citations: 32 (Scopus)
Tags: Consortia: BioSHaRE-EU | Consortia: ENGAGE | Consortia: Welsh and Scottish Farr Institutes | Type: data governance | Type: review | Type: software engineering

Toward a roadmap in global biobanking for health.
Harris, Jennifer R; Burton, Paul; Knoppers, Bartha Maria; Lindpaintner, Klaus; Bledsoe, Marianna; Brookes, Anthony J; Budin-Ljøsne, Isabelle; Chisholm, Rex; Cox, David; Deschênes, Mylène; Fortier, Isabel; Hainaut, Pierre; Hewitt, Robert; Kaye, Jane; Litton, Jan-Eric; Metspalu, Andres; Ollier, Bill; Palmer, Lyle J; Palotie, Aarno; Pasterk, Markus; Perola, Markus; Riegman, Peter H J; van Ommen, Gert-Jan; Yuille, Martin; Zatloukal, Kurt
Eur J Hum Genet, Volume 20, Issue 11 (2012)
PMID: 22713808 DOI: 10.1038/ejhg.2012.96 
Citations: 132 (Scopus)
Tags: Consortia: BBMRI | Consortia: BioSHaRE-EU | Consortia: ENGAGE | Consortia: GEN2PHEN | Consortia: OPENGENE | Consortia: P3G | Type: data governance | Type: data harmonization | Type: review

Realizing the promise of population biobanks: a new model for translation.
Murtagh, Madeleine J; Demir, Ipek; Harris, Jennifer R; Burton, Paul R
Hum Genet, Volume 130, Issue 3 (2011)
PMID: 21706184 DOI: 10.1007/s00439-011-1036-3 
Citations: 39 (Scopus)
Tags: Consortia: BioSHaRE-EU | Consortia: P3G | Type: data harmonization | Type: review