Keyword - Databases, Factual

Capability and accuracy of usual statistical analyses in a real-world setting using a federated approach.
Jégou, Romain; Bachot, Camille; Monteil, Charles; Boernert, Eric; Chmiel, Jacek; Boucher, Mathieu; Pau, David
PLoS One, Volume 19, Issue 11 (2024)
PMID: 39541283 DOI: 10.1371/journal.pone.0312697 
Citations: -
Tags: Industry: Roche

Orchestrating privacy-protected big data analyses of data from different resources with R and DataSHIELD.
Marcon, Yannick; Bishop, Tom; Avraam, Demetris; Escriba-Montagut, Xavier; Ryser-Welch, Patricia; Wheater, Stuart; Burton, Paul; González, Juan R
PLoS Comput Biol, Volume 17, Issue 3 (2021)
PMID: 33784300 DOI: 10.1371/journal.pcbi.1008880 
Citations: 22 (Scopus)
Tags: Consortia: ATHLETE | Consortia: Connected Health Cities North East North Cumbria | Consortia: EUCAN-Connect | Consortia: VEIS: 001-P-001647

The LifeCycle Project-EU Child Cohort Network: a federated analysis infrastructure and harmonized data of more than 250,000 children and parents.
Jaddoe, Vincent W V; Felix, Janine F; Andersen, Anne-Marie Nybo; Charles, Marie-Aline; Chatzi, Leda; Corpeleijn, Eva; Donner, Nina; Elhakeem, Ahmed; Eriksson, Johan G; Foong, Rachel; Grote, Veit; Haakma, Sido; Hanson, Mark; Harris, Jennifer R; Heude, Barbara; Huang, Rae-Chi; Inskip, Hazel; Järvelin, Marjo-Riitta; Koletzko, Berthold; Lawlor, Deborah A; Lindeboom, Maarten; McEachan, Rosemary R C; Mikkola, Tuija M; Nader, Johanna L T; de Moira, Angela Pinot; Pizzi, Costanza; Richiardi, Lorenzo; Sebert, Sylvain; Schwalber, Ameli; Sunyer, Jordi; Swertz, Morris A; Vafeiadi, Marina; Vrijheid, Martine; Wright, John; Duijts, Liesbeth
Eur J Epidemiol, Volume 35, Issue 7 (2020)
PMID: 32705500 DOI: 10.1007/s10654-020-00662-z 
Citations: 81 (Scopus)
Tags: Consortia: European Union Child Cohort Network | Consortia: LifeCycle | Study: 3D | Study: ALSPAC | Study: BiB | Study: CHOP-Belgium | Study: CHOP-Germany | Study: CHOP-Italy | Study: CHOP-Poland | Study: CHOP-Spain | Study: DNBC | Study: EDEN Nancy | Study: EDEN Poitiers | Study: ELFE | Study: GECKO | Study: Gen R | Study: HBCS | Study: INMA Gipuzkoa | Study: INMA Sabadell | Study: INMA Valencia | Study: MoBa | Study: NFBC1966 | Study: NFBC1986 | Study: NINFEA-Florence | Study: NINFEA-Rome | Study: NINFEA-Turin | Study: Raine Study | Study: Rhea | Study: SWS

DataSHIELD: an ethically robust solution to multiple-site individual-level data analysis.
Budin-Ljøsne, Isabelle; Burton, Paul; Isaeva, Julia; Gaye, Amadou; Turner, Andrew; Murtagh, Madeleine J; Wallace, Susan; Ferretti, Vincent; Harris, Jennifer R
Public Health Genomics, Volume 18, Issue 2 (2015)
PMID: 25532061 DOI: 10.1159/000368959 
Citations: 28 (Scopus)
Tags: Consortia: BioSHaRE-EU | Consortia: ENGAGE | Consortia: Welsh and Scottish Farr Institutes

Protecting personal data in epidemiological research: DataSHIELD and UK law.
Wallace, Susan E; Gaye, Amadou; Shoush, Osama; Burton, Paul R
Public Health Genomics, Volume 17, Issue 3 (2014)
PMID: 24685519 DOI: 10.1159/000360255 
Citations: 21 (Scopus)
Tags: Consortia: BioSHaRE-EU

DataSHIELD: taking the analysis to the data, not the data to the analysis.
Gaye, Amadou; Marcon, Yannick; Isaeva, Julia; LaFlamme, Philippe; Turner, Andrew; Jones, Elinor M; Minion, Joel; Boyd, Andrew W; Newby, Christopher J; Nuotio, Marja-Liisa; Wilson, Rebecca; Butters, Oliver; Murtagh, Barnaby; Demir, Ipek; Doiron, Dany; Giepmans, Lisette; Wallace, Susan E; Budin-Ljøsne, Isabelle; Oliver Schmidt, Carsten; Boffetta, Paolo; Boniol, Mathieu; Bota, Maria; Carter, Kim W; deKlerk, Nick; Dibben, Chris; Francis, Richard W; Hiekkalinna, Tero; Hveem, Kristian; Kvaløy, Kirsti; Millar, Sean; Perry, Ivan J; Peters, Annette; Phillips, Catherine M; Popham, Frank; Raab, Gillian; Reischl, Eva; Sheehan, Nuala; Waldenberger, Melanie; Perola, Markus; van den Heuvel, Edwin; Macleod, John; Knoppers, Bartha M; Stolk, Ronald P; Fortier, Isabel; Harris, Jennifer R; Woffenbuttel, Bruce H R; Murtagh, Madeleine J; Ferretti, Vincent; Burton, Paul R
Int J Epidemiol, Volume 43, Issue 6 (2014)
PMID: 25261970 DOI: 10.1093/ije/dyu188 
Citations: 183 (Scopus)
Tags: Consortia: BBMRI-LPC | Consortia: BioSHaRE-EU | Consortia: Welsh and Scottish Farr Institutes | Study: CHRIS | Study: FINRISK 2007 | Study: HUNT | Study: KORA | Study: Lifelines | Study: MICROS | Study: Mitchelstown | Study: NCDS | Study: PREVEND

Toward a roadmap in global biobanking for health.
Harris, Jennifer R; Burton, Paul; Knoppers, Bartha Maria; Lindpaintner, Klaus; Bledsoe, Marianna; Brookes, Anthony J; Budin-Ljøsne, Isabelle; Chisholm, Rex; Cox, David; Deschênes, Mylène; Fortier, Isabel; Hainaut, Pierre; Hewitt, Robert; Kaye, Jane; Litton, Jan-Eric; Metspalu, Andres; Ollier, Bill; Palmer, Lyle J; Palotie, Aarno; Pasterk, Markus; Perola, Markus; Riegman, Peter H J; van Ommen, Gert-Jan; Yuille, Martin; Zatloukal, Kurt
Eur J Hum Genet, Volume 20, Issue 11 (2012)
PMID: 22713808 DOI: 10.1038/ejhg.2012.96 
Citations: 120 (Scopus)
Tags: Consortia: BBMRI | Consortia: BioSHaRE-EU | Consortia: ENGAGE | Consortia: GEN2PHEN | Consortia: OPENGENE | Consortia: P3G