Keyword - Computer Security

Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory.
Bernier, Alexander; Molnár-Gábor, Fruzsina; Knoppers, Bartha M; Borry, Pascal; Cesar, Priscilla M D G; Devriendt, Thijs; Goisauf, Melanie; Murtagh, Madeleine; Jiménez, Pilar Nicolás; Recuero, Mikel; Rial-Sebbag, Emmanuelle; Shabani, Mahsa; Wilson, Rebecca C; Zaccagnini, Davide; Maxwell, Lauren
Eur J Hum Genet, Volume 32, Issue 1 (2024)
PMID: 37322132 DOI: 10.1038/s41431-023-01403-y 
Citations: 3 (Scopus)
Tags: Consortia: BBMRI-ERIC | Consortia: CINECA | Consortia: EUCAN-Connect | Consortia: EUCANCan | Consortia: euCanSHare

Orchestrating privacy-protected big data analyses of data from different resources with R and DataSHIELD.
Marcon, Yannick; Bishop, Tom; Avraam, Demetris; Escriba-Montagut, Xavier; Ryser-Welch, Patricia; Wheater, Stuart; Burton, Paul; González, Juan R
PLoS Comput Biol, Volume 17, Issue 3 (2021)
PMID: 33784300 DOI: 10.1371/journal.pcbi.1008880 
Citations: 22 (Scopus)
Tags: Consortia: ATHLETE | Consortia: Connected Health Cities North East North Cumbria | Consortia: EUCAN-Connect | Consortia: VEIS: 001-P-001647

Recovery of original individual person data (IPD) inferences from empirical IPD summaries only: Applications to distributed computing under disclosure constraints.
Bonofiglio, Federico; Schumacher, Martin; Binder, Harald
Stat Med, Volume 39, Issue 8 (2020)
PMID: 31944335 DOI: 10.1002/sim.8470 
Citations: 15 (Scopus)
Tags: Consortia: MIRACUM | Study: IST

What Does Anonymization Mean? DataSHIELD and the Need for Consensus on Anonymization Terminology.
Wallace, Susan E
Biopreserv Biobank, Volume 14, Issue 3 (2016)
PMID: 27219861 DOI: 10.1089/bio.2015.0119 
Citations: 4 (Scopus)
Tags: Consortia: BioSHaRE-EU

Genomic cloud computing: legal and ethical points to consider.
Dove, Edward S; Joly, Yann; Tassé, Anne-Marie; Knoppers, Bartha M
Eur J Hum Genet, Volume 23, Issue 10 (2015)
PMID: 25248396 DOI: 10.1038/ejhg.2014.196 
Citations: 74 (Scopus)
Tags: Consortia: International Cancer Genome Consortium | Consortia: P3G

Protecting personal data in epidemiological research: DataSHIELD and UK law.
Wallace, Susan E; Gaye, Amadou; Shoush, Osama; Burton, Paul R
Public Health Genomics, Volume 17, Issue 3 (2014)
PMID: 24685519 DOI: 10.1159/000360255 
Citations: 21 (Scopus)
Tags: Consortia: BioSHaRE-EU

DataSHIELD: taking the analysis to the data, not the data to the analysis.
Gaye, Amadou; Marcon, Yannick; Isaeva, Julia; LaFlamme, Philippe; Turner, Andrew; Jones, Elinor M; Minion, Joel; Boyd, Andrew W; Newby, Christopher J; Nuotio, Marja-Liisa; Wilson, Rebecca; Butters, Oliver; Murtagh, Barnaby; Demir, Ipek; Doiron, Dany; Giepmans, Lisette; Wallace, Susan E; Budin-Ljøsne, Isabelle; Oliver Schmidt, Carsten; Boffetta, Paolo; Boniol, Mathieu; Bota, Maria; Carter, Kim W; deKlerk, Nick; Dibben, Chris; Francis, Richard W; Hiekkalinna, Tero; Hveem, Kristian; Kvaløy, Kirsti; Millar, Sean; Perry, Ivan J; Peters, Annette; Phillips, Catherine M; Popham, Frank; Raab, Gillian; Reischl, Eva; Sheehan, Nuala; Waldenberger, Melanie; Perola, Markus; van den Heuvel, Edwin; Macleod, John; Knoppers, Bartha M; Stolk, Ronald P; Fortier, Isabel; Harris, Jennifer R; Woffenbuttel, Bruce H R; Murtagh, Madeleine J; Ferretti, Vincent; Burton, Paul R
Int J Epidemiol, Volume 43, Issue 6 (2014)
PMID: 25261970 DOI: 10.1093/ije/dyu188 
Citations: 183 (Scopus)
Tags: Consortia: BBMRI-LPC | Consortia: BioSHaRE-EU | Consortia: Welsh and Scottish Farr Institutes | Study: CHRIS | Study: FINRISK 2007 | Study: HUNT | Study: KORA | Study: Lifelines | Study: MICROS | Study: Mitchelstown | Study: NCDS | Study: PREVEND

Securing the data economy: translating privacy and enacting security in the development of DataSHIELD.
Murtagh, M J; Demir, I; Jenkings, K N; Wallace, S E; Murtagh, B; Boniol, M; Bota, M; Laflamme, P; Boffetta, P; Ferretti, V; Burton, P R
Public Health Genomics, Volume 15, Issue 5 (2012)
PMID: 22722688 DOI: 10.1159/000336673 
Citations: 18 (Scopus)
Tags: Consortia: BioSHaRE-EU | Consortia: P3G | Consortia: PHOEBE