Keyword - Biomedical Research

dsSurvival: Privacy preserving survival models for federated individual patient meta-analysis in DataSHIELD.
Banerjee, Soumya; Sofack, Ghislain N; Papakonstantinou, Thodoris; Avraam, Demetris; Burton, Paul; Zöller, Daniela; Bishop, Tom R P
BMC Res Notes, Volume 15, Issue 1 (2022)
PMID: 35659747 DOI: 10.1186/s13104-022-06085-1 
Citations: 11 (Scopus)
Tags: Consortia: EUCAN-Connect

A deterministic approach for protecting privacy in sensitive personal data.
Avraam, Demetris; Jones, Elinor; Burton, Paul
BMC Med Inform Decis Mak, Volume 22, Issue 1 (2022)
PMID: 35090447 DOI: 10.1186/s12911-022-01754-4 
Citations: 3 (Scopus)
Tags: Consortia: ATHLETE | Consortia: BioSHaRE-EU | Consortia: Connected Health Cities North East North Cumbria | Consortia: EUCAN-Connect | Study: NCDS

Rationale for a Swedish cohort consortium.
Sundström, Johan; Björkelund, Cecilia; Giedraitis, Vilmantas; Hansson, Per-Olof; Högman, Marieann; Janson, Christer; Koupil, Ilona; Kristenson, Margareta; Trolle Lagerros, Ylva; Leppert, Jerzy; Lind, Lars; Lissner, Lauren; Johansson, Ingegerd; Ludvigsson, Jonas F; Nilsson, Peter M; Olsson, Håkan; Pedersen, Nancy L; Rosenblad, Andreas; Rosengren, Annika; Sandin, Sven; Snäckerström, Tomas; Stenbeck, Magnus; Söderberg, Stefan; Weiderpass, Elisabete; Wanhainen, Anders; Wennberg, Patrik; Fortier, Isabel; Heller, Susanne; Storgärds, Maria; Svennblad, Bodil
Ups J Med Sci, Volume 124, Issue 1 (2019)
PMID: 30618330 DOI: 10.1080/03009734.2018.1556754 
Citations: 4 (Scopus)
Tags: Consortia: Swedish Cohort Consortium

International Data Sharing in Practice: New Technologies Meet Old Governance.
Murtagh, Madeleine J; Turner, Andrew; Minion, Joel T; Fay, Michaela; Burton, Paul R
Biopreserv Biobank, Volume 14, Issue 3 (2016)
PMID: 27200470 DOI: 10.1089/bio.2016.0002 
Citations: 21 (Scopus)
Tags: Consortia: BBMRI-LPC | Consortia: BioSHaRE-EU | Consortia: Welsh and Scottish Farr Institutes

Genomic cloud computing: legal and ethical points to consider.
Dove, Edward S; Joly, Yann; Tassé, Anne-Marie; Knoppers, Bartha M
Eur J Hum Genet, Volume 23, Issue 10 (2015)
PMID: 25248396 DOI: 10.1038/ejhg.2014.196 
Citations: 74 (Scopus)
Tags: Consortia: International Cancer Genome Consortium | Consortia: P3G

Data Safe Havens in health research and healthcare.
Burton, Paul R; Murtagh, Madeleine J; Boyd, Andy; Williams, James B; Dove, Edward S; Wallace, Susan E; Tassé, Anne-Marie; Little, Julian; Chisholm, Rex L; Gaye, Amadou; Hveem, Kristian; Brookes, Anthony J; Goodwin, Pat; Fistein, Jon; Bobrow, Martin; Knoppers, Bartha M
Bioinformatics, Volume 31, Issue 20 (2015)
PMID: 26112289 DOI: 10.1093/bioinformatics/btv279 
Citations: 54 (Scopus)
Tags: Consortia: BBMRI-LPC | Consortia: BioSHaRE-EU | Consortia: Welsh and Scottish Farr Institutes

DataSHIELD: an ethically robust solution to multiple-site individual-level data analysis.
Budin-Ljøsne, Isabelle; Burton, Paul; Isaeva, Julia; Gaye, Amadou; Turner, Andrew; Murtagh, Madeleine J; Wallace, Susan; Ferretti, Vincent; Harris, Jennifer R
Public Health Genomics, Volume 18, Issue 2 (2015)
PMID: 25532061 DOI: 10.1159/000368959 
Citations: 28 (Scopus)
Tags: Consortia: BioSHaRE-EU | Consortia: ENGAGE | Consortia: Welsh and Scottish Farr Institutes

Protecting personal data in epidemiological research: DataSHIELD and UK law.
Wallace, Susan E; Gaye, Amadou; Shoush, Osama; Burton, Paul R
Public Health Genomics, Volume 17, Issue 3 (2014)
PMID: 24685519 DOI: 10.1159/000360255 
Citations: 21 (Scopus)
Tags: Consortia: BioSHaRE-EU

DataSHIELD: taking the analysis to the data, not the data to the analysis.
Gaye, Amadou; Marcon, Yannick; Isaeva, Julia; LaFlamme, Philippe; Turner, Andrew; Jones, Elinor M; Minion, Joel; Boyd, Andrew W; Newby, Christopher J; Nuotio, Marja-Liisa; Wilson, Rebecca; Butters, Oliver; Murtagh, Barnaby; Demir, Ipek; Doiron, Dany; Giepmans, Lisette; Wallace, Susan E; Budin-Ljøsne, Isabelle; Oliver Schmidt, Carsten; Boffetta, Paolo; Boniol, Mathieu; Bota, Maria; Carter, Kim W; deKlerk, Nick; Dibben, Chris; Francis, Richard W; Hiekkalinna, Tero; Hveem, Kristian; Kvaløy, Kirsti; Millar, Sean; Perry, Ivan J; Peters, Annette; Phillips, Catherine M; Popham, Frank; Raab, Gillian; Reischl, Eva; Sheehan, Nuala; Waldenberger, Melanie; Perola, Markus; van den Heuvel, Edwin; Macleod, John; Knoppers, Bartha M; Stolk, Ronald P; Fortier, Isabel; Harris, Jennifer R; Woffenbuttel, Bruce H R; Murtagh, Madeleine J; Ferretti, Vincent; Burton, Paul R
Int J Epidemiol, Volume 43, Issue 6 (2014)
PMID: 25261970 DOI: 10.1093/ije/dyu188 
Citations: 183 (Scopus)
Tags: Consortia: BBMRI-LPC | Consortia: BioSHaRE-EU | Consortia: Welsh and Scottish Farr Institutes | Study: CHRIS | Study: FINRISK 2007 | Study: HUNT | Study: KORA | Study: Lifelines | Study: MICROS | Study: Mitchelstown | Study: NCDS | Study: PREVEND

Securing the data economy: translating privacy and enacting security in the development of DataSHIELD.
Murtagh, M J; Demir, I; Jenkings, K N; Wallace, S E; Murtagh, B; Boniol, M; Bota, M; Laflamme, P; Boffetta, P; Ferretti, V; Burton, P R
Public Health Genomics, Volume 15, Issue 5 (2012)
PMID: 22722688 DOI: 10.1159/000336673 
Citations: 18 (Scopus)
Tags: Consortia: BioSHaRE-EU | Consortia: P3G | Consortia: PHOEBE